CAHQL: A patient reported outcome instrument to assess health-related quality of life in congenital adrenal hyperplasia.

Myrto Eleni FlokasLi YangKimberly R MiddletonSarah KollenderMegan ParkerCharles SukinRebecca Wood PerskyDeborah P Merke

Published in: The Journal of clinical endocrinology and metabolism (2024)

CAHQL is the first validated PRO instrument to capture disease specific HRQoL outcomes in CAH. In addition to its anticipated use in the clinical setting, the instrument could be used to assess the efficacy of novel treatments in development.

Keyphrases

patient reported outcomes
type diabetes
metabolic syndrome
skeletal muscle
insulin resistance