The success of the Cystic Fibrosis Registry of Turkey for improvement of patient care.
Asfuroğlu PelinTugba Sismanlar EyubogluTana Aslan AyşeŞişmanlar Eyüboğlu TuğbaNagehan EmiralioğluEbru YalcinNural KiperVelat SenHadice Selimoglu SenDerya Ufuk AltintasDilek OzcanAyse Ayzit KilincHaluk CokugrasAzer K I L I C BaskanHakan YazanUfuk ErenberkGuzide DoganGokcen UnalAsli Imran YilmazOzlem KeskinElif ArıkErcan KucukosmanogluIlim IrmakEbru DamadogluGökçen Kartal ÖztürkFigen GulenAbdurrahman Erdem BaşaranAysen BingolSukru CekicNihat SapanGonca Kilic YildirimKoray HarmanciMehmet KöseAli OzdemirGokcen Dilsa TugcuSanem Eryılmaz PolatMelih HangulGizem ÖzcanZeynep Gokce Gayretli AydinHasan YukselErdem TopalŞebnem ÖzdoğanGonul CaltepeAyse SuleymanDemet CanPervin Korkmaz EkrenCem Murat BalMehmet KilicGuzin CinelFatma Nazan ÇobanoğluSevgi PekcanErkan CakirUgur OzcelikDeniz Dogru ErsozPublished in: Pediatric pulmonology (2022)
The z-scores of height and BMI were higher, the use of medications that protect and improve lung functions was higher and incidence of PBS was lower in 2019. It was predicted that registry system increased the care of people with CF regarding their follow-up. The widespread use of national CF registry system across the country may be beneficial for the follow-up of people with CF.