Dietary Management of Propionic Acidemia: Parent Caregiver Perspectives and Practices.

Dawn LeaOleg ShchelochkovJennifer L ClearyLaura M Koehly

Published in: JPEN. Journal of parenteral and enteral nutrition (2018)

PA parents make situational adjustments to their child's highly specialized diet. Uncertainty exists as to the situational adjustments being within the guidelines used by the metabolic healthcare team who rely on parents to inform them about dietary situational adjustments.

Keyphrases

healthcare
palliative care
primary care
mental health
physical activity
weight loss
clinical practice