The impact of patient engagement on trials and trialists in Ontario, Canada: An interview study with IMPACT awardees.
Stuart G NichollsGrace FoxZarah MonfarediEvelyn PooleChantelle GarrittyAlies MaybeeJustin PresseauBeverley SheaDean A FergussonPublished in: Research involvement and engagement (2022)
There remains a need to further build out the concept of relevancy and how it may be operationalised in practice. Further, the longer-term impacts of patient engagement on researchers and research teams remains under-explored and may reveal additional elements for evaluation. Challenges to patient engagement remain, including identifying and maintaining engagement with partners that reflect the diversity of the population of interest.