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Psychometric Properties of the Instrument for Scoring Clinical Outcomes of Research for Epidermolysis Bullosa patient score (iscorEB-p): a patient-reported outcome measure.

Gudrun SalamonSophie StroblUrsula Field-WernersAnja DiemAgnes Schwieger-BrielElena Pope
Published in: The British journal of dermatology (2024)
The iscorEB-p is a reliable and valid instrument to assess patient-reported health status of people with EB.
Keyphrases
  • patient reported outcomes
  • psychometric properties
  • patient reported
  • case report