Characterizing female patients with haemophilia A: Administrative claims analysis and medical chart review.
Ryan FarejKatharine BattOlubunmi AfonjaCarolyn K MartinRonald AubertMaureen CarlyleJohn WhiteRobert F SidonioPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2020)
Identifying females with HA is challenging using healthcare claims, because diagnostic nomenclature is unclear for female patients treated for bleeding events. Although chart abstraction enhanced claims data, very few female patients were identified with HA. Nevertheless, even in a small sample, sizeable burden in comorbidity and healthcare use was observed. Improved nomenclature and coding for HA diagnoses for women and girls is key to improving research and treatment.
Keyphrases
- healthcare
- health insurance
- end stage renal disease
- ejection fraction
- newly diagnosed
- chronic kidney disease
- polycystic ovary syndrome
- peritoneal dialysis
- risk factors
- type diabetes
- adipose tissue
- atrial fibrillation
- metabolic syndrome
- pregnant women
- affordable care act
- patient reported outcomes
- skeletal muscle
- machine learning
- big data
- data analysis
- patient reported
- social media
- hyaluronic acid