Mental health professionals' perceptions on patients control of data sharing.
Julia IvanovaMaria Adela GrandoAnita MurckoMichael SaksMary Jo WhitfieldChristy DyeDarwyn ChernPublished in: Health informatics journal (2020)
Integrated mental and physical care environments require data sharing, but little is known about health professionals' perceptions of patient-controlled health data sharing. We describe mental health professionals' views on patient-controlled data sharing using semi-structured interviews and a mixed-method analysis with thematic coding. Health information rights, specifically those of patients and health care professionals, emerged as a key theme. Behavioral health professionals identified patient motivations for non-sharing sensitive mental health records relating to substance use, emergency treatment, and serious mental illness (94%). We explore conflicts between professional need for timely access to health information and patient desire to withhold some data categories. Health professionals' views on data sharing are integral to the redesign of health data sharing and informed consent. As well, they seek clarity about the impact of patient-controlled sharing on health professionals' roles and scope of practice.
Keyphrases
- health information
- healthcare
- mental health
- social media
- electronic health record
- mental illness
- big data
- case report
- primary care
- end stage renal disease
- newly diagnosed
- public health
- emergency department
- physical activity
- prognostic factors
- peritoneal dialysis
- risk assessment
- artificial intelligence
- health insurance
- human health
- smoking cessation