Surrogate Perspectives on Patient Preference Predictors: Good Idea, but I Should Decide How They Are Used.
Dana HowardAllan RivlinPhilip CandilisNeal W DickertClaire DrolenBenjamin KrohmalMark PavlickDavid WendlerPublished in: AJOB empirical bioethics (2022)
Surrogates, like patients, strongly support the idea of using PPPs to help make treatment decisions for decisionally-incapacitated patients. These findings provide support for developing a PPP and assessing it in practice. At the same time, patients and surrogates disagree over whose preferences should determine how treatment decisions are made, including whether to use a PPP. These findings reveal a fundamental disagreement regarding the guiding principles for surrogate decision-making. Future research is needed to assess this disagreement and consider ways to address it.