Patient information portal for congenital aortic and pulmonary valve disease: a stepped-wedge cluster randomised trial.
Jonathan R G EtnelLidia R BonsFrederiek De HeerDaniëlle Robbers-VisserIngrid M Van BeynumBart StraverMonique Rm JongbloedPhilippine KièsMartijn G SliekerArie P J Van DijkJolanda KluinRobin A BertelsElisabeth M W J UtensRegina TheEugene Van GalenBarbara J M MulderNico A BlomMark G HazekampJolien W Roos-HesselinkWillem A HelbingAd J J C BogersJohanna J M TakkenbergPublished in: Open heart (2021)
Even after being invited by their cardiologists, only half of the participants actually visited the information portal. Only in those participants that actually visited the portal, knowledge of disease and mental health were significantly better. This underlines the importance of effective implementation of online evidence-based patient information portals in clinical practice.