Characteristics, Symptom Severity, and Experiences of Patients Reporting Chronic Kidney Disease in the PatientsLikeMe Online Health Community: Retrospective and Qualitative Study.

Glen James Elisabeth Nyman Marcy Fitz-Randolph Anna Niklasson Katarina Hedman Jonatan Hedberg Eric T Wittbrodt Jennie Medin Carol Moreno Quinn Alaster M Allum Cathy Emmas

Published in: Journal of medical Internet research (2020)

This study provides a unique source of real-world information on the patient experience of CKD and its management by utilizing the PLM network. The results reveal the challenges these patients face living with an array of symptoms, and report key concepts identified by patients that can be used to further improve clinical care and management and inform future CKD studies.

Keyphrases

end stage renal disease
chronic kidney disease
ejection fraction
healthcare
newly diagnosed
peritoneal dialysis
prognostic factors
public health
palliative care
emergency department
patient reported outcomes
single cell
adverse drug
electronic health record