Experiences of adolescents living with Silver-Russell syndrome.

Lisa Marie BallardElizabeth JenkinsonChristopher D ByrneJenny C ChildHazel InskipOluwakemi Lokulo-SodipeDeborah J G MackayEmma L WakelingJustin Huw DaviesI Karen TempleAngela Fenwick

Published in: Archives of disease in childhood (2021)

Adolescents with SRS may experience psychosocial difficulties from as young as 10 years old related to feeling and looking different; pain, disability and fatigue; anticipated stigma; and future challenges around employment. We discuss these findings in relation to recommendations for the care of adolescents with SRS to prepare them for adult life.

Keyphrases

young adults
physical activity
mental health
pain management
mental illness
chronic pain
healthcare
multiple sclerosis
palliative care
gold nanoparticles
childhood cancer
hiv aids
quality improvement
spinal cord
spinal cord injury
middle aged
human immunodeficiency virus
drug induced