Jordanian views regarding sharing of medical data for research: A cross-sectional study during COVID-19 pandemic.

Moawiah KhatatbehLobna F Gharaibeh Omar F KhabourRana K Abu-FarhaKarem H Alzoubi

Published in: PloS one (2022)

In this study, many of the participants had a positive attitude towards sharing biomedical data for scientific research during the COVID-19 pandemic, many had doubts in the control over their data. Thus, policymakers and data users should address the concerns and values of patients and understand their preferences in favor of an ethically scrupulous use of data in research.

Keyphrases

electronic health record
big data
end stage renal disease
chronic kidney disease
data analysis
machine learning
ejection fraction
risk factors
prognostic factors
artificial intelligence
decision making