Coverage, reporting degree and design of the Swedish quality registry for patients born with cleft lip and/or palate.
Kristina KlintöAgneta KarstenAgneta MarcussonAnna PaganiniSara RizellJenny CajanderKarin BrunnegårdMalin HakeliusÅsa OkhiriaPetra PetersonAvni AbdiuChristina HavstamHans MarkEmilie HagbergLena BjörnströmAnna-Paulina WiedelMagnus BeckerPublished in: BMC health services research (2020)
In order to achieve valid and reliable data in a healthcare quality registry, the degree of coverage and reporting needs to be high, the variables included should be limited and checked for reliability, and the professionals must calibrate themselves regularly. The Swedish CLP registry fulfils these requirements.