Patient-Reported Symptoms in the Global Multiple System Atrophy Registry.

Jose Alberto Palma Florian Krismer Wassillios G MeissnerMechteld KuijpersPatricio Millar-VernettiMiguel A PerezAlessandra FanciulliLucy Norcliffe-KaufmannPam BowerGregor K WenningHoracio Kaufmann

Published in: Movement disorders clinical practice (2022)

Patient-reported studies and ancillary online questionnaires are valid, underused research tools useful to advance our knowledge on understudied MSA features and highlight the patients' voice.

Keyphrases

patient reported
healthcare
social media
newly diagnosed
health information
chronic kidney disease
depressive symptoms
sleep quality
psychometric properties