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Patient-Reported Symptoms in the Global Multiple System Atrophy Registry.

Jose Alberto PalmaFlorian KrismerWassillios G MeissnerMechteld KuijpersPatricio Millar-VernettiMiguel A PerezAlessandra FanciulliLucy Norcliffe-KaufmannPam BowerGregor K WenningHoracio Kaufmann
Published in: Movement disorders clinical practice (2022)
Patient-reported studies and ancillary online questionnaires are valid, underused research tools useful to advance our knowledge on understudied MSA features and highlight the patients' voice.
Keyphrases
  • patient reported
  • healthcare
  • social media
  • newly diagnosed
  • health information
  • chronic kidney disease
  • depressive symptoms
  • sleep quality
  • psychometric properties