'I Don't Like Uncertainty, I Like to Know': How and why uveal melanoma patients consent to life expectancy prognostication.
Stephen L BrownPeter L FisherAndrew MorganCari DaviesYasmin OlabiLaura Hope-StoneHeinrich HeimannRumana HussainMary Gemma CherryPublished in: Health expectations : an international journal of public participation in health care and health policy (2022)
This paper is a direct response to a patient-identified and defined problem that arose in therapeutic and conversational discourse. The research was informed by the responses of patient participants, as we used the material from interviews to dynamically shape the interview guide. Thus, participants' ideas drove the analysis and shaped the interviews to come.