Meeting report: patient and caregiver recommendations for a mobile health application for paediatric systemic lupus erythematosus.
Katrina GuardinoMalaya GaerlanCaitlan S PinottiKimberly R BurnettDeborah KofoedLaura Eve SchanbergLisa B Hightow-WeidmanRachel L RandellPublished in: Lupus science & medicine (2024)
Paediatric systemic lupus erythematosus (pSLE) management and research could be enhanced by a mobile health application (app); however, no app designed for pSLE is currently available. A development and design committee comprising of patients, parents/caregivers and other stakeholders met to inform development and design of an app specific for pSLE. This meeting report summarises the group's discussions and recommendations that could help create a useful and desirable app or mobile health tool for the pSLE community.
Keyphrases
- systemic lupus erythematosus
- end stage renal disease
- intensive care unit
- disease activity
- emergency department
- ejection fraction
- newly diagnosed
- chronic kidney disease
- healthcare
- clinical practice
- palliative care
- prognostic factors
- peritoneal dialysis
- rheumatoid arthritis
- case report
- patient reported outcomes
- patient reported