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Inclusion of people living with Alzheimer's disease or related dementias who lack a study partner in social research: Ethical considerations from a qualitative evidence synthesis.

Kate de MedeirosLaura M GirlingNancy Berlinger
Published in: Dementia (London, England) (2022)
Based on findings, we suggest new and ethically appropriate ways to determine capacity to consent to social research, make consent processes accessible to a population experiencing cognitive challenges, and consider the risks of excluding a growing population from research that could benefit millions.
Keyphrases
  • healthcare
  • mental health
  • cognitive decline
  • human health
  • risk assessment
  • hepatitis c virus
  • mild cognitive impairment
  • hiv infected