Patients' and Providers' Needs and Preferences When Considering Fertility Preservation Before Cancer Treatment: Decision-Making Needs Assessment.
Aubri S HoffmanLaura C CrockerAakrati MathurDeborah HolmanJune WestonSukhkamal CampbellAshley J HoustenAndrea BradfordShilpi AgrawalaTerri Lynn WoodardPublished in: JMIR formative research (2021)
Decision making about fertility preservation is an important step in providing high-quality comprehensive cancer care and a priority for many survivors' optimal quality of life. Decision support interventions are needed to address gaps in care and help women quickly navigate toward an informed, values-congruent decision. Survivors and providers support developing a patient decision aid website to make information directly available to women outside of the consultation and to provide self-tailored content according to women's clinical characteristics and their information-seeking and deliberative styles.
Keyphrases
- decision making
- polycystic ovary syndrome
- pregnancy outcomes
- palliative care
- young adults
- end stage renal disease
- healthcare
- cervical cancer screening
- breast cancer risk
- ejection fraction
- newly diagnosed
- physical activity
- prognostic factors
- mental health
- health information
- type diabetes
- quality improvement
- peritoneal dialysis
- pain management
- childhood cancer
- insulin resistance
- metabolic syndrome
- adipose tissue
- patient reported
- health insurance
- affordable care act