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Cohort profile: the Norwegian Registry of Persons Assessed for Cognitive Symptoms (NorCog) - a national research and quality registry with a biomaterial collection.

Ingrid Tøndel MedbøenKarin PerssonMarit NåvikTorunn Holm TotlandSverre BerghCathrine Selnes TreviñoIngun UlsteinKnut EngedalAnne-Brita KnapskogAnne BrækhusAnne Rita ØksengårdPeter Otto HorndalsveenIngvild SaltvedtAnne Liv LyngrothAnette Hylen RanhoffDagny Bekkeheien SkrettinglandMala NaikJelena Zugic SoaresBente JohnsenGeir Selbaek
Published in: BMJ open (2022)
The finish date of NorCog was originally in 2029. In 2021, the registry's legal basis was reformalised and NorCog got approval to collect and keep data for as long as is necessary to achieve the purpose of the registry. In 2022, the registry underwent major changes. Paper-based data collection was replaced with digital registration, and the number of variables collected was reduced. Future plans involve expanding the registry to include patients from primary care centres.
Keyphrases
  • primary care
  • end stage renal disease
  • chronic kidney disease
  • newly diagnosed
  • quality improvement
  • big data
  • depressive symptoms
  • health insurance
  • patient reported outcomes
  • peritoneal dialysis
  • general practice