Patient's thoughts and expectations about centres of expertise for PKU.
Annemiek M J van WegbergA MacDonaldD AbelnT S HagedornE LangeF TrefzD van VlietF J van SpronsenPublished in: Orphanet journal of rare diseases (2021)
In this small study, most participants expected that assigning CEs will change the structure of and delivery of Phenylketonuria care.