Mapping Experiences of Serodiscordance: Using Visual Methodologies to Construct Relationality in Families Living With or Affected by Stigmatized Infectious Disease.
Kerryn DrysdaleChristy E NewmanAsha PerssonRebecca M GrayPublished in: Qualitative health research (2019)
The "my health, our family" research project was established to document stories of what serodiscordance (mixed infection status) means for Australian families affected by HIV, hepatitis B, and/or hepatitis C. A family mapping exercise was developed for the start of interviews as a way to conceptualize serodiscordance as a movement of "closeness" and "distance" within the relational networks that participants defined as "family," the outcome of which was originally intended as a guide to explore the contributions of each family member in the in-depth qualitative interviews that followed. Such static representations of family were soon revealed to be inadequate for capturing the contingent, flexible, and multifaceted nature of familial relationality in the management of these infections. In this article, we explore these shifts for the conceptual openness mapping methods facilitate, and the constraints they reveal, for spatializing family relations in ways that heed diverse experiences of serodiscordance.
Keyphrases
- high resolution
- mental health
- healthcare
- physical activity
- public health
- gene expression
- infectious diseases
- working memory
- hepatitis c virus
- hiv infected
- hiv positive
- quality improvement
- systematic review
- high density
- early onset
- genome wide
- men who have sex with men
- climate change
- hiv testing
- health information
- resistance training