What do parents expect from a genetic diagnosis of their child with intellectual disability?

Nicola DikowUte MoogStephanie KarchAnja SanderSamuel KilianRainer BlankGitta Reuner

Published in: Journal of applied research in intellectual disabilities : JARID (2019)

Healthcare providers should be aware of the disadvantages facing families with intellectually disabled children. Receiving practical, social and psychological support as well as genetic testing might be particularly relevant for families with severely disabled children.

Keyphrases

intellectual disability
healthcare
young adults
autism spectrum disorder
mental health
gene expression
copy number
social media
sleep quality