Cross-sectional study evaluating the association of haemophilia-related distress and clinically relevant outcomes.
Sara GuaschLia C ScottJanet FigueroaTyler W BucknerShanna MattisDuc Q TranChristine L KemptonPublished in: Haemophilia : the official journal of the World Federation of Hemophilia (2023)
Haemophilia-related distress is associated with poor adherence to factor prophylaxis and work-impairment. The direction of the association (causation) is yet to be determined and requires future study.
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