Head and Neck Paraganglioma (HNPGL) Registry: A study protocol for prospective data collection in patients with Head and Neck Paragangliomas.

Carolijn J M de BresserBernadette P M van NesselrooijMark J C van TreijenArthur Johannes Anthonius Theodorus BraatMischa de RidderRobert J StokroosRemco de BreeGert J de BorstJohannes A RijkenBart-Jeroen Petri

Published in: PloS one (2024)

The HNPGL Registry data will be used to further establish the optimal management for HNPGL patients and lay the foundation for guideline recommendations and the outline of future research.

Keyphrases

end stage renal disease
electronic health record
newly diagnosed
ejection fraction
chronic kidney disease
big data
peritoneal dialysis
current status