Developing a provincial patient support network for children and families affected by Tourette syndrome and/or obsessive-compulsive disorder: results of a stakeholder consultation.
Julian FletcherGina DimitropoulosDavide MartinoGabrielle WilcoxFrank MacMasterPaul ArnoldTamara M PringsheimPublished in: Child and adolescent psychiatry and mental health (2021)
This study identified ways that challenges with healthcare access, school learning, and seeking information can be overcome. Skills-based training webinars, educational outreach in schools, and peer support were recognized as actions for improving healthcare outcomes for people with TS and OCD. The aim of the Tourette OCD Alberta Network is to provide services and support that directly address the healthcare service delivery shortfalls shown in this study.