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"There's no playbook for when your kid has cancer": Desired elements of an electronic resource to support pediatric cancer communication.

Katie A GreenzangMadison L ScavottoAnna C RevetteSarah F SchlegelLewis B SilvermanJennifer W Mack
Published in: Pediatric blood & cancer (2023)
A new diagnosis of ALL and its treatment are extremely overwhelming. Patients and families unanimously supported an eHealth resource to provide additional information and connect them with emotional support, starting at diagnosis and extending throughout treatment.
Keyphrases
  • papillary thyroid
  • end stage renal disease
  • newly diagnosed
  • ejection fraction
  • squamous cell
  • chronic kidney disease
  • prognostic factors
  • peritoneal dialysis
  • childhood cancer
  • patient reported outcomes