Patient-reported outcomes in paediatric cancer survivorship: a qualitative study to elicit the content from cancer survivors and caregivers.
Jeanne A PierzynskiJennifer L CleggJin-Ah SimChristopher B ForrestLeslie L RobisonMelissa M HudsonJustin N BakerI-Chan HuangPublished in: BMJ open (2020)
Important PRO contents in the form of meaningful concepts raised by survivors and caregivers were different and new concepts emerged. PRO measures are warranted to include survivorship-specific items by accounting for the child's and the caregiver's viewpoints.