Caregiver-reported outcomes of pediatric transplantation: Changes and predictors at 6 months post-transplant.
Grace K CushmanAna M Gutierrez-ColinaJennifer L LeeKristin Loiselle RichLaura L MeeKelly ReaRonald L BlountCyd K EatonPublished in: Pediatric transplantation (2021)
These preliminary results indicate pediatric solid organ transplantation was associated with some improved caregiver-reported outcomes, specifically children's HRQOL, but not caregivers' psychological distress. Linear regression models identify several clinical course and pretransplant factors associated with transplantation outcomes. Characterizing how caregivers view their psychological distress levels and children's HRQOL across the transplantation process could inform family-centered holistic care and support caregiver adaptation to transplantation.