A co-designed framework to support and sustain patient and family engagement in health-care decision making.
Tamara Lynne McCarronThomas NoseworthyKaren MoffatGloria WilkinsonSandra ZelinskyDeborah WhiteDerek HassayDiane L LorenzettiNancy J MarlettPublished in: Health expectations : an international journal of public participation in health care and health policy (2020)
The results of this research describe the motivations of patient and family members who are involved with health systems in various roles including as patient advisors. A deeper knowledge of patient and family motivations will not only create meaningful engagement opportunities but will also enable health organizations to gain from the voice and experience of these individuals, thereby enhancing the quality and sustainability of patient and family involvement.