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FAIR4Health: Findable, Accessible, Interoperable and Reusable data to foster Health Research.

Celia Alvarez-RomeroAlicia Martínez-GarcíaA Anil SinaciMert GencturkEva MéndezTony Hernández-PérezRosa LiperotiCarmen AngiolettiMatthias LöbeNagarajan GanapathyThomas M DesernoMarta AlmadaElisio CostaCatherine ChronakiGiorgio CangioliRonald CornetBeatriz Poblador-PlouJonás Carmona PírézAntonio Gimeno-MiguelAntonio Poncel-FalcóAlexandra Prados-TorresTomi KovacevicBojan ZarićDarijo BokanSanja HromisJelena Djekic MalbasaCarlos Rapallo FernándezTeresa Velázquez FernándezJessica RochatChristophe Gaudet-BlavignacChristian LovisPatrick WeberMiriam QuinteroManuel M Perez-PerezKevin AshleyLaurence HortonCarlos Luis Parra Calderón
Published in: Open research Europe (2022)
Due to the nature of health data, its sharing and reuse for research are limited by ethical, legal and technical barriers. The FAIR4Health project facilitated and promoted the application of FAIR principles in health research data, derived from the publicly funded health research initiatives to make them Findable, Accessible, Interoperable, and Reusable (FAIR). To confirm the feasibility of the FAIR4Health solution, we performed two pathfinder case studies to carry out federated machine learning algorithms on FAIRified datasets from five health research organizations. The case studies demonstrated the potential impact of the developed FAIR4Health solution on health outcomes and social care research. Finally, we promoted the FAIRified data to share and reuse in the European Union Health Research community, defining an effective EU-wide strategy for the use of FAIR principles in health research and preparing the ground for a roadmap for health research institutions. This scientific report presents a general overview of the FAIR4Health solution: from the FAIRification workflow design to translate raw data/metadata to FAIR data/metadata in the health research domain to the FAIR4Health demonstrators' performance.
Keyphrases
  • healthcare
  • public health
  • mental health
  • machine learning
  • electronic health record
  • health information
  • big data
  • health promotion
  • human health
  • palliative care
  • deep learning
  • data analysis
  • climate change
  • single cell