Challenges in the care of individuals with severe primary insulin-like growth factor-I deficiency (SPIGFD): an international, multi-stakeholder perspective.
Philippe F BackeljauwMary AndrewsPeter BangLeo Dalle MolleCheri L DealJamie HarveyShirley LanghamElżbieta PetriczkoMichel PolakHelen L StorrMehul Tulsidas DattaniPublished in: Orphanet journal of rare diseases (2023)
To address the challenges faced by individuals and families affected by SPIGFD, greater awareness of SPIGFD is needed within the healthcare community, and a consensus on best practice in the care of individuals affected by this condition. Continued efforts are also needed at a global level to challenge existing perceptions around SPIGFD, and identify solutions that promote equitable access to appropriate care. Medical writing support was industry-sponsored.