How does genetic risk information for Lynch syndrome translate to risk management behaviours?
Emma SteelAndrew RobbinsMark JenkinsLouisa FlanderClara GaffLouise KeoghPublished in: Hereditary cancer in clinical practice (2017)
Non-carriers and female carriers of Lynch syndrome could benefit from further clarity and advice about appropriate risk management options. For those carriers who did not adhere to colonoscopy screening, a lack of faith in both genetic test results and screening were evident. It is essential that consistent advice is offered to both carriers and non-carriers of Lynch syndrome.