Preferences for Communication About End-of-Life Care in Atypical Parkinsonism.
Gerard SaranzaEmilio Q VillanuevaAnthony E LangPublished in: Movement disorders : official journal of the Movement Disorder Society (2021)
Our study demonstrates that patients with AP have preferences regarding the timing of the discussion of the different themes surrounding EOLC and ACP. A needs-based approach in initiating and conducting timely discussions on these difficult but essential issues is proposed. A thorough explanation and recognition of a patient's beliefs are recommended when initiating conversations about MAiD and brain donation. © 2021 International Parkinson and Movement Disorder Society.