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Prioritization of research engaged with rare disease stakeholders: a systematic review and thematic analysis.

Soho YoonMinjee LeeHoi-In JungM Mahmud KhanSo-Yoon KimHannah KimSophia Wasti
Published in: Orphanet journal of rare diseases (2023)
Stakeholder research on RD reveals that there are significant instances of unmet needs and various challenges faced by the medical system in dealing with RDs. Furthermore, public awareness and support is critical to ensuring political feasibility of increasing national-level investments for RDs and development of medical products and treatment.
Keyphrases
  • healthcare
  • quality improvement
  • mental health
  • emergency department