Stakeholders' Perspectives on Caregiver Outcomes for Health Care Transition for Adolescents and Young Adults with Special Health Care Needs: A Qualitative Study.
Cynthia De Vane FairCecily BetzDiana NaranjoJerlym PorterElizabeth Caitlin BaileyHannah KorycinskiMaria FerrisPublished in: Child: care, health and development (2023)
Healthcare providers can assist parents/caregivers in learning strategies for instructing their AYASHCN about condition-related knowledge and skills as well as provide support for "letting go" of the caregiver role during the HCT to adult-focused health services and adulthood. Communication between the AYASCH, their parents/caregivers, pediatric- and adult-focused providers, needs to be consistent and comprehensive to ensure continuity of care and a successful HCT. We also offered strategies to address the outcomes suggested by the participants of this study.