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Stakeholders' Perspectives on Caregiver Outcomes for Health Care Transition for Adolescents and Young Adults with Special Health Care Needs: A Qualitative Study.

Cynthia De Vane FairCecily BetzDiana NaranjoJerlym PorterElizabeth Caitlin BaileyHannah KorycinskiMaria Ferris
Published in: Child: care, health and development (2023)
Healthcare providers can assist parents/caregivers in learning strategies for instructing their AYASHCN about condition-related knowledge and skills as well as provide support for "letting go" of the caregiver role during the HCT to adult-focused health services and adulthood. Communication between the AYASCH, their parents/caregivers, pediatric- and adult-focused providers, needs to be consistent and comprehensive to ensure continuity of care and a successful HCT. We also offered strategies to address the outcomes suggested by the participants of this study.
Keyphrases
  • healthcare
  • palliative care
  • young adults
  • physical activity
  • cell cycle arrest
  • type diabetes
  • middle aged
  • adipose tissue
  • early life
  • signaling pathway
  • medical students