Engaging family partners in deceased organ donation research-a reflection on one team's experience.
Amanda Van BeinumHeather TalbotLaura HornbyMarie-Chantal FortinSonny DhananiPublished in: Canadian journal of anaesthesia = Journal canadien d'anesthesie (2019)
Family engagement in deceased organ donation research is feasible and contributes positively to study progress and outcomes. Patient and family engagement in challenging research contexts may require special attention to the emotional challenges of participation. We hope that our experience will encourage clinical researchers working in deceased organ donation and similarly complex domains to consider including patient partners in their projects.