The Burden of Sickle Cell Disease on Children and Their Caregivers: Caregiver Reports of Children's Health-Related Quality of Life and School Experiences, Caregiver Burden, and Their Association with Frequency of Vaso-Occlusive Crises.
Andrew CampbellAvery A RizioKristen L McCauslandSerban IorgaGlorian P YenJincy PauloseSoyon LeePublished in: Patient related outcome measures (2023)
VOC frequency is negatively associated with HRQoL, highlighting the burden experienced by children with SCD and their caregivers.