A survey to understand the feelings towards and impact of COVID-19 on the households of juvenile dermato myositis patients from a parent or carer perspective.
Meredyth Grace Llewellyn WilkinsonWing WuKathryn O'BrienClaire T DeakinLucy R WedderburnPolly LivermorePublished in: Rheumatology advances in practice (2021)
Families who have a child or young person with JDM have been affected by COVID-19. Qualitative comments highlight that it has been a very difficult time. Further investigation is required into this area and could be compared with research on the effects of COVID-19 on other patient groups with chronic disease.