Perspectives of adolescents with neurofibromatosis 1 and cutaneous neurofibromas: Implications for clinical trials.

Ashley CannonKavita Y SarinAndrea K PetersenDominique C PichardPamela L WoltersGregg EricksonAndrés J Lessing Tanja DudenbostelClaas RöhlTena RosserBrigitte C WidemannJaishri O BlakeleyScott R Plotkin

Published in: Clinical trials (London, England) (2023)

These data indicate that adolescents with neurofibromatosis 1 are negatively impacted by their cutaneous neurofibromas, and that both adolescents and their caregivers would be willing to try longer-term experimental treatments.

Keyphrases

young adults
physical activity
clinical trial
palliative care
preterm infants
machine learning
open label
big data
phase ii
study protocol