Ethical conflicts in translational genetic research: lessons learned from the eMERGE-III experience.

Colin Michael Egenberger HalversonSarah T BlandKathleen A LeppigMaddalena MarasaMelanie MyersHila Milo RasoulyJulia WynnEllen Wright Clayton

Published in: Genetics in medicine : official journal of the American College of Medical Genetics (2020)

All these issues ultimately derive from ethical conflicts inherent to translational work being done at the interface of research and clinical care. A critical rethinking of this divide is important, but infrastructural support for such work is necessary for an ethically sound rollout of large-scale genetic testing.

Keyphrases

healthcare
decision making
palliative care
quality improvement
genome wide
copy number
health insurance