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Consent as a compositional act - a framework that provides clarity for the retention and use of data.

Minerva C Rivas VelardeChristian LovisMarcello IencaCaroline SamerSamia Hurst
Published in: Philosophy, ethics, and humanities in medicine : PEHM (2024)
We argue that by clearly differentiating the goals, the procedures of implementation, and what is being done or undone when one consent, one can better face the challenges of contemporary data-intensive biomedical research, particularly regarding the retention and use of data. Conceptualising consent as a compositional act enhances more efficient communication and accountability and, therefore, could enable more trustworthy acts of consent in biomedical science.
Keyphrases
  • electronic health record
  • computed tomography
  • quality improvement