Parents' Perspectives on the Utility of Genomic Sequencing in the Neonatal Intensive Care Unit.

Amy A LemkeMichelle L ThompsonEmily C GimpelKatelyn C McNamaraCarla A RichCandice R FinnilaMeagan E CochranJames M J LawlorKelly M EastKevin M BowlingDonald R LatnerSusan M HiattMichelle D AmaralWhitley V KelleyVeronica GreveDavid E GrayStephanie A FelkerHannah MeddaughAshley CannonAmanda LuedeckeKelly E JacksonLaura Godfrey HendonHillary M JananiMarla JohnstonLee Ann MerinSarah L DeansCarly TuuraTrent HughesHeather WilliamsKelly LabordeMatthew B NeuJessica Patrick-EsteveAnna C E HurstBrian M KirmseRenate SavichSteven B SpedaleSara J KnightGregory S BarshBruce R KorfGregory M CooperKyle B Brothers

Published in: Journal of personalized medicine (2023)

Parents reported that GS during the neonatal period was useful because it provided a "backbone" for their child's care. Parents did not consistently endorse negative impacts like interference with parent-infant bonding.

Keyphrases

healthcare
preterm infants
palliative care
mental health
single cell
quality improvement
copy number
gene expression
pain management
health insurance
affordable care act