Labor market participation and productivity costs for female caregivers of minor male children with Duchenne and Becker muscular dystrophies.
Rieza H SoelaemanMichael G SmithKashika SahayJ Mick TilfordDana GoodenoughPangaja ParamsothyLijing OuyangJoyce OleszekScott D GrossePublished in: Muscle & nerve (2021)
Female caregivers of non-ambulatory boys with DMD face additional household budget constraints through income loss. Failure to include informal care costs in economic studies could understate the societal cost-effectiveness of strategies for managing DMD that might prolong ambulation.