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The impact of the COVID-19 pandemic on neurofibromatosis clinical care and research.

Heather B RadtkeBonita P Klein-TasmanVanessa L MerkerPamela KnightNicole J UllrichJustin T JordanBruce KorfScott R Plotkin
Published in: Orphanet journal of rare diseases (2021)
Results show marked impacts on NF care and research since the beginning of the pandemic, with potential long-term changes related to the introduction (or adoption) of telehealth for clinical care.
Keyphrases
  • healthcare
  • palliative care
  • quality improvement
  • sars cov
  • pain management
  • coronavirus disease
  • signaling pathway
  • oxidative stress
  • electronic health record
  • chronic pain
  • nuclear factor