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The power of informal cancer caregivers' writings: results from a thematic and narrative analysis.

Nicoletta SuterGiulia ArdizzoneGuido GiarelliLucia CadorinNicolas GruarinChiara Cipolat MisNancy MichilinAlessandra MerighiIvana Truccolo
Published in: Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer (2021)
Seven main themes emerged from the 40 stories' thematic analysis: perceptions of the disease; biographical breakdown; relationships; transformation of the sick body; IC's role; encounter with death; and strength of memory. The ICs' stories also highlighted the strengths and weaknesses of the patient's clinical pathway. ICs are a resource not only for the patient, who, thanks to them, is assured of continuous assistance but also for the healthcare organization, above all because they serve a relational role as a "bridge" between patients and healthcare workers. ICs have important messages to offer to healthcare organizations. If involved adequately, they can provide a strategic strength in supporting patients and healthcare workers themselves. The in-depth analysis of the themes and subthemes in this study led the authors to hypothesize that expressive writing benefit ICs with respect to the possibility of sharing their experiences with others and giving evidence of their role. Their stories are a testimony that can help those who face a similar experience.
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