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(In)Visible illness: A photovoice study of the lived experience of self-managing rheumatoid arthritis.

Susie DonnellyAnthony G WilsonHasheem MannanClaire DixLaura WhitehillThilo Kroll
Published in: PloS one (2021)
Our findings suggest that RA is experienced as a fluid relationship between states of masking and surfacing of illness shaped by contextual and situational factors. Photovoice was a highly effective tool to capture and communicate this complexity. Supporting increased agency among individuals with RA to control the (in)visibility of illness and disability can inform the development of future self-management support.
Keyphrases
  • rheumatoid arthritis
  • disease activity
  • ankylosing spondylitis
  • interstitial lung disease
  • multiple sclerosis
  • systemic lupus erythematosus
  • current status
  • systemic sclerosis