Development of a patient-reported experience questionnaire for patients with sarcoma: the Sarcoma Assessment Measure (SAM).

Ana Martins Lindsey Bennister Lorna A Fern Craig Gerrand Maria Onasanya Lesley Storey Mary Wells Jeremy S Whelan Rachael Windsor Julie Woodford Rachel M Taylor

Published in: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation (2020)

SAM comprises of 22 items reflecting physical, emotional, social, financial wellbeing and sexuality. This systematic process of using patient experience to develop the content of SAM will ensure that it measures what is important to patients.

Keyphrases

patient reported
end stage renal disease
mental health
ejection fraction
newly diagnosed
healthcare
physical activity
peritoneal dialysis
patient reported outcomes
young adults