Indicators of health in Down syndrome: A virtual focus group study with patients and their parents.

Stephanie L SantoroMaria J CabreraKelsey HaugenKavita KrellVanessa L Merker

Published in: Journal of applied research in intellectual disabilities : JARID (2023)

Partcipants discussed physical, social, and mental well-being components of health in Down syndrome. Interviewing individuals with Down syndrome in virtual focus groups with appropriate modifications added important self-report health information.

Keyphrases

health information
mental health
healthcare
social media
end stage renal disease
public health
ejection fraction
newly diagnosed
chronic kidney disease
peritoneal dialysis
physical activity
prognostic factors
risk assessment
climate change
patient reported