Long-term quality of life after hematopoietic cell transplant for sickle cell disease in childhood: A STELLAR interim analysis.

Staci D ArnoldNitya BakshiDiana RossCrystal SmithCynthia SinhaAnirudh VeludhandiValerie DutreuilShasha BaiLillian R MeachamGreg GuilcherMonica BhatiaAllistair AbrahamKimberly A KasowAnn HaightFuad El RassiElizabeth StengerJoseph LipscombLakshmanan Krishnamurti

Published in: American journal of hematology (2024)

We prospectively collected PROMIS©25 and PROMIS©29 surveys in the Sickle Cell Transplant Evaluation of Long Term and Late Effects Registry (STELLAR). Mobility and social participation T-scores were decreased; all other domains were within the norm.

Keyphrases

sickle cell disease
patient reported outcomes
single cell
physical activity
mental health
bone marrow
stem cells
mesenchymal stem cells
young adults