Joining forces to understand what matters most: qualitative insights into the patient experience of outpatient rheumatology care.
Madeleine J BryantRebecca MuntRachel J BlackAmy C ReynoldsCatherine L HillPublished in: Rheumatology advances in practice (2023)
This study captured valuable insights into the current experience of outpatient rheumatology care from the perspective of patients and HCPs. It informs a collective understanding of differing and shared priorities, positives of current care and areas requiring change. Themes derived from the study data can be conceptualized in terms of the process, content and impact of care. Such domains can be measured longitudinally by routine implementation of validated patient-reported experience measures in rheumatology.
Keyphrases
- healthcare
- quality improvement
- palliative care
- patient reported
- end stage renal disease
- pain management
- primary care
- chronic kidney disease
- ejection fraction
- systematic review
- juvenile idiopathic arthritis
- clinical practice
- oxidative stress
- peritoneal dialysis
- prognostic factors
- systemic lupus erythematosus
- big data
- artificial intelligence
- electronic health record